Show - --- The Salt Lake Tribune Sunday April 15 1990 NV3 Walking the journey' part of Holy Cross AIDS program 77''' By Pat Capson Tribune Lifestyle Writer Richard Gustafson and Billy Daniels share a small home on a quiet y street in downtown Salt Lake City In January 1989 after a trip to the emergency room at Holy Cross Hospital with what appeared to be pneu- monia Mr Gustafson learned he had AIDS Mr Daniels became ill in April The diagnosis was advanced complex (ARC) a term used to describe a variety of conditions resulting from infection with the AIDS virus Too ill to work they quit their jobs Mr Gustafson as a security officer Mr Daniels as a cook Both men needed help of a practical and emotional nature in adjusting to lives irrevocably altered by the information Help was forthcoming from Sister Linda Bellemore and the staff in the Continuity of Care Program at Holy Cross Hospital a unique program care linking inpatient and follow-u"Sister Linda became our lifeline to the outside world" Mr Gustafson said "She would stop by our house to see what we needed It might be a quart of milk or a new refrigerator It might be a ride to the hospital for an injection She helped us through the bureaucratic maze so we could get the financial help we needed Without her we might not be here today Certainly we would not be doing as well as we are" Mr Gustafson and Mr Daniels are two of the 175 patients served by the Continuity of Care program since it began in 1987 Of those patients Sis- ter Linda says "We walk the journey with them" The journey begins when a person tests positive for human immunodeficiency virus (HIV) a condition which invariably progresses to AIDS The time involved in moving from HIV positive to AIDS varies For some it's years For others it's months "Many patients we see are like Mr Gustafson and Mr Daniels" Sister Linda said "young men who have never had anything more serious than a cold and have certainly never been hospitalized Often they have completed their educations and their careers are about to take off when the disease strikes They haven't had time to accumulate savings and they have no retirement plans If they don't work they don't get paid and are faced with tremendous medical We guide them to help available through the Department of Social Services Medicare Medicaid and Social Security "For young men who have been it is difficult to ask for help They often perceive it as one-wa- a AIDS-relate- ih 1r i0 n e Lh Lh v! t ! vl ts e d g r — r- -- — reopmfierwkm 0 " 44 - rl'''': t '0wi'''i6f'44'!t'' ' - ---"::::':- ' WA 4 I ''''' '4---' -- a- :::t- ':L :::44 : - '1147 :: d ': '"':L!::''''''it: :i ':7":':N: :::1t1 :i:4!:4::--0::l'i::":-1-:?!:::Oi:)- - '' '4 t Qii- - ''''':':"::::-'"-":"- :i - ::"'''''"-- ' '''''''''':' w: ' :0'k '':?I '40' H Alpreniflt 1 ?: 4 's:: t'': :!:'"4: :!i::::::i:i::- 4 6F ::44 p47're41 I " -:p--- - -::-- - - I 4p! :5'''':'''') :1 - ::' -- ' :':r - !: ' f :::''': 1W'' '"'i ' : "::H ' - :" i: - ii::::' "Ni:t':''''Oi::: Nt' - ': :::--:"- i"' ''':' '1:''':: " ' - - " '::::'': e4"i-':- -' '' - i W' li!kr'' '''0 mi--:- 0':-- oft: 43- -1 :::::::--- ::t :4 - '''''''''''''' 0 ''': :'1::: : " ":: gdulaglnitoyoii :I 4- :e' :0owoor4ii :i7?(!t 4::::1-:- ':::' ::' 1":': - ew ! ' -- - '' - :r-::- -- :':: ":':y::::--1:::001:::::-::::7:- :'QL --' :''7j1: ::::::': 46t::Eio::::::::::H::::::::::-- '' :tot i 4!::'?-:- : !:r:::::::::g4k :":::::s 4:?: -: ''-- :'' l :::: ::! :':':::'( '::::':!-':- - - ''''' ':4''' 0:- -Photo by Stall 44 Al All Salt Lake City hospitals now treat AIDS patients and the yniver- sity Hospital has an AIDS clinic Other sources of help include the AIDS Coalition offering such practical help as a food bank and the Utah AIDS Foundation handling legall matters and lobbying efforts Graduate nutrition students at the University of Utah are now offered a community nutrition course in which they spend two days visiting homes e Patients assessing of their needs Under the sponsorship of St Jolong-terseph's Villa a nursing facility the Shalom Apartments in Salt Lake City provide low-cohousing to people who are HIV positive Holy Cross Hospital was among the first to open its doors to AIDS patients Its Continuity of Care gram funded by donations and grants is one of a handful of such "outreach" programs in the United care after States offering follow-uhospital stays - 71) Hartmann brings groceries and Sister Linda Bellemore members of the Holy Cross Hospital Continuity of Care program AIDS patients Richard Gustafson left Billy Daniels come visit from VISTA volunteer Norman Plate who wel- a young man wanted me to help him plan his funeral As we talked he revealed that he had always wanted to go to Epcot Center in Florida It so happened thatI was scheduled to go to Florida to give a talk about AIDS I was able to arrange for him to go office at the ohospitalOn the wall is a fabric hanging reminiscent of the famous AIDS quilt made of thousands of individual blocks each representing a person who has died of the disease Written in black on the hanging are names of 64 patients who have died since the program bef gan two and years ago The program offers help to patients family members and friends in areas which could be defined as spiritual practical and emotional Home visits are at the heart "We never know what we will find when we are called to make a home visit" Sister Linda said "We may think we are simply delivering a hamburger and instead find someone close to suicide During one visit are hospitalized Sometimes a friend or relative will call our office recog- the need for assistance and nlizing reticence of the person to seek help "Many contacts come through physicians" The mission of the Continuity of Care Program is achieved by a lean staff headed by Grace Blodgett director of medical services at Holy Reeves and Sister Linda Continuity of Care providers and Norman E Plate a University of Illinois law school graduate dedicating a year of service to people with AIDS as a Volunteers in Service to America (VIS- TA) volunteer The group works out of a modest HIV-positiv- and he gave the talk instead "We focus on the quality of living as opposed to death We encourage patients to think of what they can and want to do rather than what they can no longer do "Sometimes the smallest act is the most effective A ride up the canyon can be therapeutic "We pray with patients if they desire We encourage them to renew links with their faith especially as we help them deal with impending one-hal- Cross and including Claudette HIV-positiv- - --4 ::::::: '''i:1"4k1-"-i:- 5'''''" :4:t:::- 1: ":" :: :::::: :4'::!::74":S:::'::::': - ""'"i :: :::: i '1'4 'E' ' :: :::m:: '''''2''' - :- ' partners had the virus The tragedy of AIDS she adds is that the person must face not only the inevitability of death but also the stigma the world attaches to the disease For that reason much of her work deals with the emotional ramifications of the illness "Our first contact is usually a visit to a new patient in Med III the infectious disease ward of the hospital where personnel is educated specifie cally to treat patients" she said "We tell Ihem what services are available in the community and offer to contact them when they go home I cannot think of a time when a patient did not welcome a home visit "We see some people before they ''''''VY'-'- :''::: :1: :': :tt:::::k::: 1:::-::::::--:34- ::i!:::':5 ?:440 ::::":: :'':":' - 00- :Ne try to help the patient make dccisions Ho w can he handle relationships with family and friends that may be changing because of his illness? How honest must he be with an employer? "housing may bc the most pressing need particularly for those with- out home and family awaiting when they leave the hospital" A primary objective givers healcothamr is encouraging and asan optimum level of sisting them in following prescribed medical treatment plans "For people who have been diagnosed as having a terminal disease this may se endeavor" Sister Linda said -- but people don't die of AIDS "They die from pneumonia or from diseases described in medical terms as 'opportunistic' diseases they can't fight off as a result of a suppressed immune system "These diseases can be treated if the patient goes for help and can sometimes be averted through proper nutrition We cannot change the can enhance the ibifuetwe '4:1:1 : If'' : :: stan(111:lify :::::-?:- f::':"::! ::::::'::::::i: ': l' '1 17444! itigt14-k- ft4'-aivy?' k:4-4- : 11 f"i:''' :: '::::::-- tgoetthtehedirocptroerscorriptthwensgrfoilcieerdy help them pay bills or fill out forms for welfare or food :: ' ?tikr:: F 1i:ci''ovo - ::" y !gIF ::!! :: sthhenme l - ::::il :::: plii::4::::"7:::: 1 Ig:A::::t::A:::t:: i v- 74 1 vi 4E::::: 1: :t: - '4'::4:::: ::::::':''64 ''4': H''::'ti-l':- I 0e'::011i17:ke4:':: :1440t 1 ::::::':'-:'- - :"":4:1:1'i'Zi!-'7::::- 4::1 :: ": :::":'''::'! ::1W -- !:::::::Il'::Ii11:!:1:::l'!::!1:::::!'::::::::!i::'1'':::1:: ::'' :::::--- -' y:-:!:::::- ': - - ::ys!i-:- ' i :" i: :' 41:i:'!::::41:::!''':''"::1:!::::::::E::::::::i(:::-!:::'::':1'- H-:::- J'P:)ita :H A::f2' :4- '' ::::'::45':' :::: :::- -- i:0':!::'::(:-:::' ::!:::!iii!::::-::is:: 0 l" :: - — '::!:!:!: :: irST"'5'' : - i::::4'iit':''"-:!:P- fT'k::::i:'1!i::' ::i! :777::' ' - — :: - d'd'irissiic:eansexiksaeonfpdteicnpkaatthiCeonmnfsseuclepaunetnncoe lopf)anigtrheetd : :' ::0 0114- ? :: ''''- '6'A:'''''''''''''''i'''''' 1'1°i4:''''''':''''''::: '16A:k70ilk'::::':":"-:-- 14: :0g:"::i::i:i11:IET ::::1::::'::'i::''l::!::is''::: ''''' ' ' ':' :TIV:: '::'''0 - '''''''''''''''' te:i7:!-t- "i::iiV!4 :4 '::'li:::': :: ' 4 1::y::::: :: 4 ::::: :o: :''!:::::: t'i'' :!:::0i::::: ' 1 :::: - ' :::::9i: - ''':-171it- i - 1 1 ":' 1 t It: '''''"' " '''"' 414"ww"e2"feAl''"'"1(: :?ii' Ar421 4i- - '' ::::: ''''''""e4444 - :: i :40-- :::4:: :':::::::l':'::'':::'5:: :::::':''::"::-4-e'- -- :'- '''::i04:1:- -- 4"'-i ""A ee i!:::- aim- :! ::::: :4-x1::::: :: :: :?:4:) w4saiLiz's iP ' i' — death We discuss their image of God: is he a loving God or a punishing one?" 'We also help with practical af- - j:::::::‘:::'?i:i::1: :s:: 'P' i :1-- s1 Ivy' ' - i! '!: i?"::: A ig:4:'s':'::LbioH: f vii:1itozeI:::i::::l-7H- -- 7- ''' A - -- --- ' V) :4 ' ?!::"54t4 t:g':"" -g I ' s''f'--- 4'04xi-05:&- p !d 'r'k-- ' ''' 14 ' ': 1 'k'::' 'f'' 1 non-prof- st p undignified" The stereotype of the patient with AIDS as a young male homosexual does not hold up however according to Sister Linda While many patients fit that pattern many do not They may be past or present intra- Colorful comfortable to pile on and priced - - : venous drug users or persons with hemophilia or others who received transfusions of blood prior to May 1985 when blood screening began They may be babies born to infected mothers or persons whose sexual i - I' ' - Any benefits to bee pollen? -- A " t : - 4011 A ' -- - ' -' '' '' 4d ! : Neil Solomon No - 41- 4k !''-4----:--------- - i :Y t - — — 1''' '4I 144'' - -- e""' '' P-- !! "'" illSi! ' ‘?4fai: Irv' ' 274 r - t7 i - 'Ie ' 'th' " ''' 44":1 "" - — ''' - :! t5't'''V4'i-- ''''441 litatLi4ftge'satooktiti-- -- ' ) -- t ' ' -1k - - r ""'"- '4"ti r- - -- -'' : d ' " : - ' ' - - " ' Buy Of equal '' '""' — pA - i 7 ' - ' ' -- : '- ' - ' ' ' ' L i I e' t i 2nd for 12 price get or lesser value 1 9 -- - 7 Al 1' 2 17 s - -' '' ii" 4 - - -- - Open until 10 D!t4040-'-- ' - 04 'rill to your home and hardly spend a ' u I ':: it:t' - ''itl'71'''''''":t' fq: : PM 7 days a week 15 Prices good Sunday April 15 through Saturday April 21 1990 - 44I'V- l -- - ' s ' sr: yr- A decorator colors! - -- "'-- - - -'''''''::''''1 7I4 'r' s -- : 4 ' " 44 Items On this page are available at all stores except Burlingame Hollywood Bose City Sixth & Alder Stadium Broadway Lake City WA and Pendleton i --al -- ' e polyester fill Pile on the stylein romantic ruffles or upbeat knife edge designs You'll find plenty of pillows to match your style at Freddy's '''''''''''''''' 171 4- - ' Pile on the colorfrom red and navy to coral and rose in coordinating prints and solid colors You'll find all the colors vou like Pile on the comfort100 cotton covers stuffed with plenty of soft - '' ":- ''' - ' -- 'rsrse-1--- '''1' e'' 2 How do you add color and comfort thing? Pile on the pillows! oii4 ' s- - par0i ''''' :f - y ' i 4474 ' ' 4 - l!!!:: 46:' 4 - - : - : rlift"--t2 - row4 - - - ' ''''''' -- ''i71''' 1"1r14-'-':t1- tlii 4-1- litudraasesioatvw5SCrAWdMbikkki44 - ( - tiPzii':- k! ' - ' r 1'0 I1 (431 - ' — :' ' kt'':44''4''''''-'11-''- Pr7 "7" 14!-- ' 'a--s'''''- ' -- Aii414 - i 1711:4'''-'41 't''''''''-T'''!:- I !!! 4RePgWwIrt s 'Jalf:'4' "4"4'1 044100047' ' - 1 N- - thsis :'1:::11 4 ''''''':Y-LtI- ' v'Z !' - '"-- - 7----r-4- - ' -- :aili — ""'''''': !y J I t : : ' 4 ' ':-41- : :rit - ' - At 1 1 — i - f:' t N : 1 '4' - ' 4 i :V - l -- i ::i4: 0 i: - - ' - 44 e "z ' ' ' ': i: - ' - - - 4 Dear Dr Solomon: Whenever in a restaurant I order a baked potato instead of french fries or mashed potatoes with butter because I know the baked potato is healthier And when the waiter asks me if I want it served with butter or sour cream I tell him I want it plain But the fact of the matter is that a baked potato can be rather dry and I'd like to know if there's anything besides butter or sour cream that can be used on it that would make it less dry without adding a ton of calories — Ms WG Tuscaloosa Ala Dear Ms G: You could ask for skim milk which could be added to the potato through a slit in its skin and mash it in with the back of a fork You could also try topping the cottage cheese potato with non-fa- t Dear Dr Solomon: Every time I go it shopping at the supermarket seems that more kinds of cereals have been put on the shelves And each one is supposed to be better than the others The result is I become more confused If I'm looking cold cereal is there Jor a high-fibe'anything in particular that I should be looking for or should I just close my eyes and choose one? — Kim New York City Dear Kim: Bran cereals generally are rich in fiber: they may be packaged as bran flakes raisin bran or corn bran If the cereals you purchase are also marked 'fortified or "enriched" they also should be a good source of iron I would recommend cereal as a ha sis for a nntritious breakfast as an alternative to the traditional high-fa- t breakfast of bacon and eggs tr - '': "': k'::'i:'1-::- t:''::':rr'''''''' '' - eat ' 1ixtaqsx4r404AolookiiitpiwikA - a sse-- - 4:srt:' 4:' i - - -- -- brenwood originab - -- - -- - !rv - - Each of these advertised Items must be readily available for sale at or below the advertised price in each Fred Meyer store except as specifically noted in the ad i 1' 4pti::-k- -: I IMONOMMOOM1011MINVimalimMeionnIENNA001 -- tio c - ' - uIPS0111MMMMUMOMoolb1MO ' IIe i 1 11101001ftir 11MP Dear Dr Solomon: I would appreciate your opinion about adding bee pollen to the diet especially for an athlete — Brent No Platte Neb Dear Brent: The addition of bee pollen to the diet is of no proven benefit g i f 4 ‘ 7F 1I - - - — ::: - i- r 1 I :7 |