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Show 18 Utah close to meeting newborn screening threshold SALT LAKE CITY-- CITY-- Nearly 90 percent of all babies born in the United States, more than double the percentage in 2005, live in states that require screening for at least 21 serious disorders, according accord-ing to the latest March of Dimes Newborn Screening Screen-ing Report Card. Utah has . made great strides in advocacy ad-vocacy and awareness in the last few years. Today, the state of Utah requires screening for 28 of the 29 core conditions. The March of Dimes endorsed en-dorsed the 2004 report of the American College of Medical Genetics (ACMG) that calls for every baby born in' the U.S. to be screened for 29 genetic or David J. 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If diagnosed di-agnosed early, all of these devastating conditions can be successfully managed or treated to prevent severe se-vere consequences. . Two years ago, after the March of Dimes endorsement, endorse-ment, only 38 percent of infants were born in states that required screening for at least 21 of these 29 core conditions. As a result re-sult of four years of intensive inten-sive advocacy efforts by March of Dimes chapters and their partners, that percentage has increased to 87.5, or about 3.6 million babies. "We are making progress prog-ress toward screening each Utah newborn for all 29 of the recommended S P LIN E Y E CENTER travel. 3 768-3312 465-9898 377-3674 655-0777 798-1423 491-8993 623 - 2322 433 - 2008 A SPRINGVILLE HERALD disorders," says Stephen McDonald, director of program pro-gram services, March of Dimes Utah Chapter. "The only condition of the 29 we don't screen for is Cystic Fibrosis and the Newborn Screening Advisory Committee Com-mittee has now recommended recom-mended doing that. We hope the state will move forward with this recommendation." recom-mendation." While this important expansion of newborn screening is very good news for families, the lives of 500,000 newborns who still aren't tested hang in the balance," said March of Dimes President Dr. Jennifer L. Howse. "Despite "De-spite the pleas of parents, clinicians and advocacy groups, the United States still lacks consistent federal feder-al guidelines for newborn screening. Babies must be screened to receive immediate im-mediate treatment necessary neces-sary to survive and lead healthy lives. The lack of federal guidelines makes it difficult for states to get support for needed legislation," legisla-tion," she said. In states that don't follow fol-low the ACMG recommendations, recommen-dations, March of Dimes staff and volunteers continue con-tinue to work with governors, gover-nors, legislatures, health departments and parent groups to advocate for expanded ex-panded newborn screening on a state-by-state basis. The March of Dimes was a primary stakeholder stakehold-er in expanding newborn screening in Utah three years ago and continues to advocate for including includ-ing Cystic Fibrosis to the screening panel. Contact the March of Dimes at 801-746-5540 and join the efforts ef-forts to help the babies of Utah get access to comprehensive compre-hensive screening. Nationwide, a discouraging discourag-ing 6.1 percent of babies are born in states that required re-quired screening for only 10 to 20 of the core conditions condi-tions and 6.2 percent of newborns will get screening screen-ing for fewer than 10 conditions. con-ditions. "Disparities in state newborn screening programs pro-grams mean some babies may die or develop brain damage or other severe complications because they are not identified in time for effective treatment," treat-ment," said Dr. Howse. "All babies across America Amer-ica should receive the benefits ben-efits of being screened for all of these 29 core conditions," condi-tions," said Dr. Howse. This is the fifth consecutive consecu-tive year the March of Dimes has analyzed state-by-state newborn screening screen-ing requirements, creating a snapshot of the nation's progress toward improving improv-ing the health of infants and children. The March of Dimes contracted with the National Newborn Screening Screen-ing and Genetics Resource Center to survey each state's newborn screening requirements. The snapshot shows that the nation is on target to MB meet the March of Dimes goal of having all babies screened for 20 or mtore of the recommended panel of genetic disorders by 2008. The March of Dimes supports sup-ports two pieces of federal legislation, the 'Newborn Screening Saves Lives Act sponsored by Sen. Christopher J. Dodd (D-CT), (D-CT), Sen. Orrin Hatch (R-UT), (R-UT), Rep. Lucille Roybal-Allard Roybal-Allard (D-CA), and Rep. Mike Simpson (R-ID) and 'The Screening For Health of Infants And Newborns (SHINE) Act of 2007,' sponsored by Sen. Hillary Rodham Clinton (D-NY) and Rep. Thomas Reynolds Reyn-olds (R-NY). These bills would lay the groundwork for national guidelines and authorize funding for several new federal initiatives designed to increase educational resources for parents and health care providers, improve im-prove follow-up care for infants, provide assistance to states expanding and improving their newborn screening programs and develop new screening tools for additional life-threatening life-threatening disorders. "We call on Health and Human Services Secretary Secre-tary Mike Leavitt to help give all babies a fighting chance for a healthy life through expanded newborn new-born screening," said Dr. Howse. The ACMG recommendation recommen-dation to screen for 29 conditions con-ditions has been endorsed by clinicians and researchers research-ers alike, including the American Academy of Pediatrics (AAP) and the federal Health and Human Services Secretary's Advisory Advi-sory Committee on Heritable Herita-ble Disorders and Genetic Diseases in Newborns and Children. Both the March of Dimes and the AAP have called for a national newborn screening standards stan-dards as well as federal funding to help states improve im-prove their screening programs. pro-grams. A list of which screening screen-ing tests are provided by each state can be found on the "Peristats" section of the March of Dimes Web site at marchofdimes. comperistats, which is updated up-dated regularly, or at the National Newborn Screening Screen-ing and Genetics Resource Center Web site at genes-r-us.uthscsa.edu. "Regardless of how many screening tests are mandated by individual states, parents and health professionals should be fully ful-ly informed of the benefits and availability of comprehensive compre-hensive newborn screening," screen-ing," Dr. Howse said. "It's also advisable for parents to receive information on screening tests for those conditions for which there is not yet treatment," she stated. Newborn screening is done by testing a few drops of blood, usually from a newborn's heel, before be-fore hospital discharge. 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Close to schools & shopping. $265,000 Utah V- l" 4 - - - -- 'wmr v v ' - , - vQm - s. t L 2 I,- ,rtii,fi-'i,wliri-iii-li;Miii-iiiMfnr-iifiiiiiiTf-w-ii-iiti.--iftl a-iBUt loan i'iwiiiaiuMj GREAT NEWS! State Farm has reduced auto rates in UTAH IrlV UKE A GOOD NEIGHBOR Providing Insurance Slate Um tiaamie Thursday, August 2, 2007 March of Dimes Web site at marchofdimes.comnbs. Those who live in states where newborn screening is limited can arrange privately pri-vately for additional tests, often at additional expense to the family or health plan. Parents should check with their doctor or their state health department for a list of providers of these screening tests. LOVELY HOME If! MAPLETOIi! Beautifully refinished leaving the homes personality intact Great kitchen and living space upstairs. 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