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Show 2D Lakeside Review North, Wednesday, Sept. 21, 1983 Incurable Disease Cripples Bodies, Lives of Victim s LYNDIA GRAHAM Review Correspondent LAYTON Muscular dystrophy is an often misunderstood disease which touches the lives of thousands of Americans each year. It is a disease without a cure at the present time which causes many young and older bodies to gradually waste away to the point of weakness and deformity. Actually muscular dystrophy is the name for a group of diseases that for the most part are genetically determined and are not contagious. Most forms of the disease are passed by an affected gene to an unborn child. It can come from ' one or both parents, even though neither suffers the dis- le followup. A test to detect unaffected female carriers is also available. The services are of-fered at no cost to the patients, favorite activity of the . room, that young mother thought he would return and prescribe some pills that would solve her sons problem in a few days, said Curt Youngman, a resident of Layton who is president of the Utah chapter of the The children eventually lose ns activities. Counselors from Davis County, Brad Allen, Larry Inez, Karen Graham, Christa Graham, John Lindeman, helped with the youngsters from Utah, Ideally there is one counselor for each camper at the summer camp. Three of the young campers were from Davis County. While at the camp the MD victims, most of whom were in wheelchairs, were treated to a week of fun,, including horseback e riding, swimming, a trip to sen Planetarium, nights out for therapeutic and rehabilitative their ability to turn over in the night, making it nercessary for tele-tho- n. fFSMWZ&- mmnr Han-On- . parents to awake and turn their child to prevent pressure sores and insure comfort. Obviously the strain is not only on the affected child but on the whole family. Often parents cannot leave for any length of time because of the needs of their child and lack of someone who can help the child with those needs. But through the support of the Muscular Dystrophy Association and donations from private citizens, the fight to find a cure for the disease and help for the families and victims is intensified each year. Youngman said that a recent hosted by the Jerry Lewis national MD Association , chairman, is just one e xample ,of the efforts of the MDA to , raise money. The MDA was organized in 1930 when a group of parents whose children had the disease banded together with the belief that there are no incurable diseases, only diseases for which no treatments have yet been, found. That has been the philosophy of the MDA ever since. The MDA provides funding, ! tele-tho- unteers and patients from Utah gathered at the Westminster College in Salt Lake for a week of al night. ease himself. Two types seem particularly prevalent, Duchenne, which affects young boys, and dystrophy which can affect a child of either sex. Some types of the disease are passed from a mother to her sons and the likelihood of a daughter being a carrier is great. Other children who have the disease have no family background of MD, and are called sporadic cases, ".leaving scientists unsure ' whether all cases are hereditary. But from whatever source, when muscular dystrophy strikes it brings heartbreak and concern, .turning lives upside down over--' night. One young Provo mother took . her toddler son into her family i doctor for a checkup because of his ficquent falls. The doctor di- -' agnosed MD and left her with a booklet on the disease to read about this crippler that she knew nothing about. When the doctor left the limb-gird- ation. What the booklet told her was that she faced the possibility of losing her child within five years and that there was no known cure, Youngman said. That sad scene or a variation of it is repeated daily throughout the world. As affected muscles deteriorate, walking and moving around become more and more difficult until eventually the child is confined to a wheelchair. In some cases it progresses far enough that help is needed to eat and to clear the breathing pas- sages which fill up with mucus as the patient lies in bed at camp is often the only time they can enjoy such an acitivity away from their homes and families. cerns. Youngman said that donations conA highlight of the camp was to the MDA could help to the to aid research, the the filming of origional skits tinue as which were broadcast during the children, and activities such the summer camp program. can be made by conYoungman said that because of their special needs, many of the tacting the MDA in Salt Lake information Youngyoungsters are not. able to partic- for for more contacted at 546 be can man ipate in most of the activities of their peers and that the summer 0200. pizza, singing and just plain old associating with others who can share their problems and. con- MDA, and a favorite with the youngsters who attend, is the annual MDA Summer Camp. This year more than 100 vol- through donations, for research into the several dystophic diseases. for doctors and clinics here and abroad. Since 1973, 10 MDA supportcenters have ed research-clinicbeen established in the search for a cure. Patient and family services are also offered by the MDA. The direct patient services include orthopedic appliances, educational and recreational activities, physical therapy, and aid in transportation. A network of 240 clinics provide diagnostic services and Muscular Dystrophy Associ- Bin m dfiST 260 8ftl (Former Albertson's Location) ' 1 12 OZ. n, ORANGE JUICE LIMIT LB. FRESH 2 LIMIT 2 m CANS PER COUPON I OHE C09P0H PER CUSTOMER rAaaaaaaaaa LOAFS OHE COUPON PER COUPON PER CttSTCZER ! . Rain or Shine 1 Eclectic Decorating Is Odd Assortment PRIVAlUABft 1 MAID GALLON 0' 3 All Porpooo IS CLOVER ' for a change, he said, ignoring .his usual place by the glass patio The fact that many national doors. home beautification magazines Ulp! I tried to swallow a have used the word to describe a gasp. The eating utensils laid decorating trend that allows out, atop the placemat he had homemakers to furnish their liv- just commandeered, consisted of ing quarters with a collection of a plastic fork from McDonalds, items representing contrasting a souvenir parfait spoon from, periods and styles has been a Yellowstone, and a popsicle stick intended for use in the butboon to my kitchen. Huw else could I justify the ter dish. odd assortment of silverware Honey, my husband began that adorns my dinette set at any with the kind of stony look that could probably petrify protogiven meal? Take yesterday, for instance: plasm, What has happened to At breakfast, Jennifer had the all our silverware? What silverware? I asked, Lasting Rose teaspoon, the Paul Revere pistol handled trying hard to affect innocense. That nice set of stainless we knife, and a relish fork. Stacee, on the other side of the table, got for our wedding. had the dishwasher-saf- e steak Oh, that silverware! I said. knife, the Venetian Lace fork, Well, the spoons are all out in and a measuring spoon. the sandpile. Of course, I was careful to And the forks? make sure David, their father, The forks are in the garden got the only intact set of Ultra holding up the empty seed packSatin. ages that mark each row. At lunch, everything matched. I see, my husband said The four preschool kids and I ate our pork n beans with five grimly, but I knew he didnt. d Danish Modern Spoons in the sandpile. Forks the garden. Knives? in forks donated by my mother, There was no way to avoid woho collected them from cereal the question. In the fridge, I boxes back in 1934. said, swinging open the freezer Supper time was another stoDave home compartment door to reveal half came ry, though. from work hot and tired. I a dozen homemade popsicles guess Ill sit here out of the sun. with their stainless steel sticks. SHARON NAUTA STEELE Eclectic. m three-pronge- yd': Pianist, 9, to Perform CLINTON Clinton pianist Emmett Ricks, 'the son of Dennis and Kathy Ricks, 2606, N. 720 W., will be featured in two early autumn performances, beginning Tuesday, Sept. 27, at 7 p.m., with a one man concert to be held at the Clearfield Davis County North Branch Library, 562 So. 1000 E. Five days later on Oct. 2, at p.m. Ricks will appear as a grand finalist in the KSL Talent Showcase on Channel S. 1 During the library performance, young Ricks, a student of Brent Johnston, will perform a variety of blues, ragtime, classical and popular compositions. Intermission entertainment will be provided by Childsplay, 1983 Farm Bureau Talent Find winning combo comprised of Emmett, his sister Emily Ricks, and Curtis and Kelby Carter. The public is invited. A fifth grade student at Fremont Elementary School, the pianists past performing credits include concerts at Ogdens Union Station and the Wolf-cree-k Country club. Cancer Screening T uesday CLEARFIELD A cancer screening clinic has been scheduled by the Clearfield LDS Stake on Tuesday, Sept. 27, between the hours of 9 a.m. and 3 p.m. at the stake center, 933 S. State. All women ages 20 years old and older, who are interested in the examinations privately given by specially ' trained nurses. should contact LaPreal Allison, for an appointment. A d fee, based On annual income over $4,000 will be charged for the tests. It was incorrectly reported in last weeks Lakeside Review that the screening tests would be performed on Saturday. The Lakeside Review regrets the error. 825-289- looping too v. 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